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How I Learned to Live With My Chronic Illness

My+best+friend+Alisha+Bhavsar+%2811%29+coming+to+visit+and+do+arts+and+crafts+with+me+at+CHOC+hospital.
Simran Vaswani
My best friend Alisha Bhavsar (11) coming to visit and do arts and crafts with me at CHOC hospital.

In early October, my constant stomach pains and frequent vomiting led my family and me to believe that I had the stomach flu. Little did we know, this would be the start of a journey none of us were prepared for.

 

I later went to the Children’s Hospital of Orange County (CHOC), where I was later admitted to the infection floor. Upon admittance to CHOC, my doctors thought I had a type of bacterial infection, which was wreaking havoc amongst my intestines and colon. After two days of no food to clear out my system, I had a colonoscopy and endoscopy to learn what was wrong with me internally. They finally came to the diagnosis of Crohn’s Disease, a type of Inflammatory Bowel Disease (IBD).

 

Shreya Shah (11) explains, “I know someone who was diagnosed with Crohn’s Disease, and I have seen firsthand how it can affect someone mentally and physically.” 

I know someone who was diagnosed with Crohn’s Disease, and I have seen firsthand how it can affect someone mentally and physically.

— Shreya Shah (11)

 

Crohn’s Disease is when the gastrointestinal tract is inflamed, which causes various symptoms. Once I learned what was wrong with me, I started my course of treatment through blood infusions every few weeks. I finally got to go home, yet that was where my life changed more drastically. 

 

When I got home, I thought I wouldn’t have to live with the symptoms, and I could go back to my normal life, yet I was pretty wrong. I underestimated the effects of getting diagnosed with a chronic illness at 15 years old. I still experienced a lot of my previous symptoms, and in addition, I felt very fatigued and even lost my appetite. In a week, I lost close to 7 pounds. In 2 weeks, I lost 11 more. I started to struggle mentally; I felt weak, and I stayed confined in my room all day. I sat in bed all day, listening to music and doing homework occasionally. I didn’t want to come outside my “little shell” because I felt alone, and no one understood what I was going through. I didn’t want to eat because I was scared of the pain that would soon follow. 

 

Eventually, I finally realized that it was time for a change in my life and that I couldn’t live like this any longer. I decided to keep a log of what I eat and what I feel after eating certain foods. I even started to make changes in my diet and took my nutritionist’s advice on certain foods to avoid and specific foods to add to my diet. After two more weeks, I noticed a change in how I felt about myself. I was feeling much happier and more healthier. I started to get my blood infusions more regularly, and that helped me feel better as well. I even was put on a steroid drug to help me get my weight up and reduce inflammation, as well as antacids and multivitamins.

 

Throughout this journey, I had reached a few ups but also some of the lowest points in my life, some even leading me to believe I was never going to get better. During the time I was confined to myself, I researched my Disease so I could better understand what was going on inside of me. I went to crohnscolitisfoundation.org and started to read about what I was diagnosed with. 

 

IBD is starting to become more frequent in younger ages, and it is essential to be aware of the symptoms and to get checked out by a Gastroenterologist if you are developing any symptoms of IBD. 

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About the Contributor
Simran Vaswani
Simran Vaswani, Editor
Simran Vaswani is currently a sophomore at Yorba Linda High School. This is Simran’s second year on The Wrangler, and she is excited to take on the new responsibilities of being an editor. In her free time, Simran enjoys listening to various artists, cooking, and spending time with her friends. Yet, after school, you can almost always find her on the tennis court, practicing with the YLHS Women’s Varsity Tennis Team. Simran is exploring her options for the future.

Comments (2)

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  • B

    BrendaDec 14, 2023 at 7:58 AM

    It’s crazy how much a diagnosis can affect you, hope you feel better!

    Reply
  • M

    Mylie BrownDec 14, 2023 at 7:54 AM

    Love you Simran!

    Reply